This section includes information on the current trials and research projects open in Bristol. You can find out some basic information about these studies here but should contact your local haemoglobinopathy team to express your interest, to get more information and to find out if you would be eligible.
REDRESS trial
The REDRESS study is a clinical trial researching the use of stem cell transplant (also known as bone marrow transplant) to treat people with severe sickle cell disorder (SCD). This trial is potentially available for people with severe sickle cell disorder who do not have a fully matched sibling donor.
Find out more at: redresstrial.co.uk
Improving Black Health Outcomes (IBHO) Bioresource
This new research initiative is dedicated to studying health conditions affecting people from Black communities in the UK. The IBHO BioResource invites individuals from Black ethnic backgrounds to participate in research aimed at improving our understanding of how these conditions might develop and specifically affect those from Black communities.
The UK lacks a dedicated research resource that can enable crucial studies to help us understand the health experiences of individuals from Black communities. The development of the IBHO BioResource will allow this important work with a view to better understanding and improved prognosis of common and rare health conditions in these communities. Participation contributes to shaping future healthcare strategies and interventions tailored to meet the needs of Black individuals.
Genomics England are supporting the recruitment of patients with sickle cell disorders and thalassaemia to this study (including patients who are not from a black ethnic background) with the aim of supporting crucial research into these conditions.
Find out more at:
