This section of the website is intended for children with a haemoglobinopathy (sickle cell disorders or thalassaemia) or rare anaemias, and their parents and carers.
You will find some useful resources regarding the conditions we treat. You can also download patient information leaflets, access the support directory, newsletters and more.
Age 14-18 patient support group
One day, every school holiday from 11-12pm
Purpose of the group: To bring young people together to give them a chance to discuss any concerns they have in regard to transitioning to adult services and to build bonds with other young people that are experiencing the same health challenges.
Who is the group for? Face to face for Bristol paediatric patients from 14-18 years old.
Who will facilitate the sessions? Sarah Muddle Clinical Psychologist, Hayley Wiles Benign Haematology Family Support Worker and Melanie Marsh Haemoglobinopathies Adult Support Worker
