This section of the website is intended for adults with a haemoglobinopathy (sickle cell disorders or thalassaemia) or rare anaemias.
You will find some useful resources regarding the conditions we treat. You can also download patient information leaflets, access the support directory, find out about trials we are running in the area and more.
Travel and benefit support: We are more than happy to help and support with any requests relating to benefit application and/or travel support letters but we would need a minimum of 2 weeks’ notice either via text, email or over the phone.
Patient support group meetings: We hold monthly virtual patient support group meetings. Click here to find out more.
Patient feedback: We always welcome feedback. Please click this link to answer a few questions about what is going well and what needs some improvement.
Adult patient support group
First Wednesday of the month, 12-1pm via MS Teams
Purpose of the group: The support group is a chance to come together to share your experiences of living with sickle cell or thalassemia with others who also live with these conditions. The sessions are for facilitated peer support, not group therapy.
Who is the group for? The group is for the patients within the Adult Haemoglobinopathy Service, University Hospitals Bristol and Weston NHS Foundation Trust.
Who will facilitate the sessions? The group will be facilitated by clinical staff from the UHBW Haemoglobinopathy Service. This will normally be one of the Clinical Nurse Specialists and the Clinical Psychologist.
What did others think of these sessions?
- “It has been helpful hearing others’ views”
- “It’s great talking to other people with the same diagnosis”
- “There’s a sense of community. That there are others that really understand what you’re going through.”
